Some of the data provided by the intractable disease registry groups to the RADDAR-J are available for secondary use.

1. Secondary use of data refers to the release of data, managed and operated by the Genomic Information Integration department, Clinical Information Integration department, and RADDAR-J, to external third-party organizations.
2. RADDAR-J believe that secondary use of data by third-party organizations working to elucidate the pathology and etiology of and obtain new findings on intractable diseases, will contribute to further our understanding of intractable diseases.
3. Secondary use of data involves provision of data for a fee and registration in a public database.
4. Data available for secondary use is limited to data for which consent for secondary use has been granted by the study subjects (patients).
5. Secondary use of data requires the approval of the steering committees responsible for managing and operating the data, and the registry group that provided the data.