| Item | Content |
|---|
| Research project name |
Research Project on the Rare / Intractable Disease |
| Study title |
Study on revision of diagnostic criteria and classification of degree of severity, and establishment of diagnosis and therapeutic guidelines for Castleman's disease and TAFRO syndrome presenting noncancerous, chronic inflammatory lymph node and bone marrow abnormalities |
| Name of principal investigator |
Kazuyuki Yoshizaki |
| Name of institution of the principal investigator |
The Institute of Scientific and Industrial Research, Osaka University |
| Target disease |
Castleman disease |
| Registry name |
Study on the survey on the actual status of epidemiology and practice of Castleman disease |
| Purpose of registry |
Survey of natural history, Investigation into the number or the distribution of patients, Epidemiological study, Sample collection, Investigation of biomarkers, Genetic analysis study, Provision of information to registered patients, Provision of information to physicians in charge
|
| Overview of registry |
|
| Research item |
Name, Sex, Date of birth, Information about the current medical institutions of patients, Family history, Past medical history, Complication, History of present illness, History of treatment, Laboratory data, Degree of severity, Clinical course, QOL, Prognosis, Cause of death
|
| Contact |
Kazuyuki Yoshizaki |
| E-mail address |
kyoshi●sanken.osaka-u.ac.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
