| Item | Content |
|---|
| Research project name |
Research Project on the Rare / Intractable Disease |
| Study title |
Study on prion diseases and slow virus infection |
| Name of principal investigator |
Masahito Yamada |
| Name of institution of the principal investigator |
Faculty of Medicine, Institute of Medicine, Pharmaceutical and Health Sciences, Kanazawa University |
| Target disease |
Subacute sclerosing panencephalitis |
| Registry name |
Epidemiological survey on subacute sclerosing panencephalitis |
| Purpose of registry |
Survey of natural history, Investigation into the number or the distribution of patients, Epidemiological study
|
| Overview of registry |
Periodical questionnaire surveys to physicians in charge and survey based on DPC data have been conducted as a study group.
|
| Research item |
Sex, Information about the current medical institutions of patients, Situation of public financial support, Situation of specific disease medical support, Past medical history, Complication, History of present illness, History of treatment, Laboratory data, Degree of severity, Clinical course, ADL, QOL, Functional prognosis
|
| Contact |
Takeshi Hamaguchi |
| E-mail address |
prion●med.kanazawa-u.ac.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
