| Item | Content |
|---|
| Research project name |
Research Project on the Rare / Intractable Disease |
| Study title |
Study on intractable vasculitis |
| Name of principal investigator |
Masatoshi Harigai |
| Name of institution of the principal investigator |
Tokyo Women’s Medical University |
| Target disease |
microscopic polyangiitis,granulomatosis with polyangiitis,eosinophilic granulomatosis with polyangiitis,unclassifiable ANCA associated vasculitis |
| Registry name |
RemIT-JAV and RemIT-JAV-RPGN |
| Purpose of registry |
Survey of natural history, Investigation into the number or the distribution of patients, Epidemiological study, Sample collection, Investigation of biomarkers, Genetic analysis study
|
| Overview of registry |
Japanese patients with newly-onset AAV were registered and followed 2 years and about half were followed up to 4 years. Treatments, disease activity score, damage score, were collected at month 0, 3, 6, 12, 18, and 24. Sera, RNA, DNA, virtual slides of renal biopsy were collected. Mod Rheumatol. 2017;27(4):646-651Mod Rheumatol. 2016;26(5):730-7Arthritis Res Ther. 2015;17:305Mod Rheumatol. 2015;25(4):657-9Arthritis Res Ther. 2014;16(2):R101J Rheumatol. 2012;39(3):545-51
|
| Research item |
Sex, Date of birth, Information about the current medical institutions of patients, Family history, Past medical history, Complication, History of present illness, History of treatment, Laboratory data, Degree of severity, Clinical course, Prognosis, Cause of death
|
| Contact |
Masatoshi Harigai |
| E-mail address |
harigai.masayoshi●twmu.ac.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
