| Item | Content |
|---|---|
| Research project name | Research Project on the Rare / Intractable Disease |
| Study title | Study on intractable respiratory diseases and pulmonary hypertension |
| Name of principal investigator | Koichiro Tatsumi |
| Name of institution of the principal investigator | Chiba University Graduate School of Medicine |
| Target disease | Pulmonary hypertension associated with respiratory diseases |
| Registry name | Japan Respiratory Pulmonary Hypertension Study (JRPHS) |
| Purpose of registry | Survey of natural history, Patient recruitment for clinical trials or other interventional studies, Sample collection, Investigation of biomarkers, Genetic analysis study, Provision of information to registered patients, Provision of information to physicians in charge |
| Overview of registry | This study is to analyze prognosis of pulmonary hypertension associated with respiratory diseases, assess usefulness of drugs, and analyze therapeutic effects and prognosis by degree of severity. |
| Research item | Sex, Date of birth, Information about the current medical institutions of patients, History of treatment, Laboratory data, Degree of severity, Clinical course, Prognosis, Cause of death |
| Contact | Koichiro Tatsumi |
| E-mail address | tatsumi●faculty.chiba-u.jp |
| Registry URL | https://japanph.com/ph/JAPHR_JRPHS/ |
* If the E-mail address is shown, replace "●" with "@", please.