| Item | Content |
|---|
| Research project name |
Research Project on the Rare / Intractable Disease |
| Study title |
Study on intractable hemangioma, vascular malformation, lymphangioma, lymphangiomatosis and related diseases |
| Name of principal investigator |
Sadanori Akita |
| Name of institution of the principal investigator |
Department of Plastic, Surgery, Wound Repair and Regeneration, School of Medicine, Fukuoka University |
| Target disease |
Hemangioma, vascular malformation |
| Registry name |
National epidemiological survey |
| Purpose of registry |
Investigation into the number or the distribution of patients
|
| Overview of registry |
Patients who are candidates for intractable diseases and newly receive financial support for medical expenses among 3681 patients with angioma and vascular malformation treated at 85 institutions between January 2009 and December 2011
|
| Research item |
Sex, Date of birth, Address, Information about the current medical institutions of patients, Place of birth, Past medical history, Complication, History of present illness, History of treatment, Degree of severity, Clinical course, Functional prognosis, Prognosis
|
| Contact |
Sadanori Akita |
| E-mail address |
akitas●hf.rim.or.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
