| Item | Content |
|---|
| Research project name |
Research Project on the Rare / Intractable Disease |
| Study title |
Study on health care policy for rare intractable chronic gastrointestinal disorders from childhood to accelerated phase and adulthood |
| Name of principal investigator |
Tomoaki Taguchi |
| Name of institution of the principal investigator |
Faculty of Medical Sciences, Kyushu University |
| Target disease |
Giant hepatic hemangioma in infants |
| Registry name |
Giant hepatic hemangioma in infants |
| Purpose of registry |
Survey of natural history, Investigation into the number or the distribution of patients, Epidemiological study
|
| Overview of registry |
This study plans to prepare the database of 19 patients who newly developed in the past five years in Japan from the national survey by 2010 and 2011 Research on Measures for Intractable Diseases “Study Group for Hepatic Hemangioma in Infants” (principal investigator: Tatsuo Kuroda)”, continuously store the database in this study and operates a new registry.
|
| Research item |
Sex, Date of birth, Complication, History of present illness, History of treatment, Laboratory data, Degree of severity, Prognosis
|
| Contact |
|
| E-mail address |
ped-surg●pedsurg.med.kyushu-u.ac.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
