| Item | Content |
|---|---|
| Research project name | Research Project on the Rare / Intractable Disease |
| Study title | Study on establishment of the medical system of radical treatment of eosinophilic gastrointestinal disorders and severe persistent cases, and multi-food elimination diets |
| Name of principal investigator | Ichiro Nomura |
| Name of institution of the principal investigator | Department of Allergy and Clinical Immunology, National Center for Child Health and Development |
| Target disease | Eosinophilic gastrointestinal disorders |
| Registry name | Online sheet (B site) for eosinophilic gastrointestinal disorders and food protein-induced enterocolitis syndrome in neonates and infants |
| Purpose of registry | Survey of natural history, Epidemiological study, Patient recruitment for clinical trials or other interventional studies, Sample collection, Investigation of biomarkers, Provision of information to registered patients, Provision of information to physicians in charge |
| Overview of registry | This registry will be available for physicians who treat food protein-induced enterocolitis syndrome, eosinophilic gastroenteritis, and eosinophilic esophagitis in neonates and infants nationwide by providing passwords upon request for data entry. Special test results by the study group will also be revealed through the site. |
| Research item | Sex, Family history, Complication, History of present illness, History of treatment, Laboratory data, Degree of severity, Clinical course |
| Contact | Keiko Sasagawa |
| E-mail address | sasagawa-k●ncchd.go.jp |
| Registry URL | https://www.egid.jp/ |
* If the E-mail address is shown, replace "●" with "@", please.