| Item | Content |
|---|
| Research project name |
Practical Research Project for Rare / Intractable Diseases |
| Study title |
Study on development of evidence for standardization of treatment for congenital diaphragmatic hernia |
| Name of principal investigator |
Hiroomi Okuyama |
| Name of institution of the principal investigator |
Department of Pediatric Surgery, Osaka University Graduate School of Medicine |
| Target disease |
Congenital diaphragmatic hernia |
| Registry name |
Case registration of congenital diaphragmatic hernia study group |
| Purpose of registry |
Survey of natural history, Investigation into the number or the distribution of patients, Epidemiological study
|
| Overview of registry |
|
| Research item |
Sex, Date of birth, Past medical history, Complication, History of present illness, History of treatment, Laboratory data, Degree of severity, Clinical course, ADL, QOL, Functional prognosis, Prognosis, Cause of death
|
| Contact |
Hiroomi Okuyama |
| E-mail address |
okuyama●pedsurg.med.osaka-u.ac.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
