| Item | Content |
|---|
| Research project name |
Research Project on the Rare / Intractable Disease |
| Study title |
Healthcare infrastructure study group for adult-onset leukoencephalopathy |
| Name of principal investigator |
Osamu Onodera |
| Name of institution of the principal investigator |
Brain Research Institute, Niigata University |
| Target disease |
Adult-onset leukoencephalopathy |
| Registry name |
Registry of adult-onset leukoencephalopathy |
| Purpose of registry |
Investigation into the number or the distribution of patients, Genetic analysis study
|
| Overview of registry |
|
| Research item |
Sex, Date of birth, Information about the current medical institutions of patients, Family history, Past medical history, Complication, History of present illness, History of treatment, Laboratory data, Degree of severity, ADL
|
| Contact |
|
| E-mail address |
|
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
