Development of evidence for deep brain stimulation (DBS) for refractory Tourette’s syndrome

Item	Content
Research project name	Practical Research Project for Rare / Intractable Diseases
Study title	Development of evidence for deep brain stimulation (DBS) for refractory Tourette’s syndrome
Name of principal investigator	Yukiko Kano
Name of institution of the principal investigator	Department of Child Neuropsychiatry, The University of Tokyo Hospital
Target disease	Refractory Tourette's syndrome
Registry name	Refractory Tourette's syndrome
Purpose of registry	Comparison between DBS-treated group and DBS-untreated group
Overview of registry	This registry collects data on history of present illness, family history, development history and past medical history of tic and complications. Data on tic, complications and indications will be collected during a certain period after the trial for the DBS-treated group and after diagnosed with refractory Tourette’s syndrome for the DBS-untreated group.
Research item	History of present illness, History of treatment, Degree of severity, Clinical course, QOL
Contact	Yukiko Kano
E-mail address	kano-tky●umin.ac.jp
Registry URL

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