| Item | Content |
|---|
| Research project name |
Research Project on the Rare / Intractable Disease |
| Study title |
A QOL study on adult patients with skeletal diseases |
| Name of principal investigator |
Hiroshi Kitoh |
| Name of institution of the principal investigator |
Nagoya University Graduate School of Medicine |
| Target disease |
|
| Registry name |
Registry of patients with achondroplasia (hypochondroplasia) |
| Purpose of registry |
Survey of natural history, Epidemiological study
|
| Overview of registry |
This study is to establish the registry of patients with achondroplasia (hypochondroplasia) who visited Nagoya University and related hospitals by anonymization in a linkable fashion.
|
| Research item |
|
| Contact |
Hiroshi Kitoh |
| E-mail address |
hkitoh●med.nagoya-u.ac.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
