| Item | Content |
|---|
| Research project name |
Research Project on the Rare / Intractable Disease |
| Study title |
Comprehensive study group for genetic rare intractable diseases of the skin |
| Name of principal investigator |
Takashi Hashimoto |
| Name of institution of the principal investigator |
Osaka City University |
| Target disease |
Suppurative hidradenitis |
| Registry name |
|
| Purpose of registry |
Investigation into the number or the distribution of patients, Epidemiological study
|
| Overview of registry |
“The following items were registered.
- Patient background → sex, age, past medical history, family history, smoking history, duration of disease, whether satisfy the diagnostic criteria
- Classification of degree of severity → degree of severity based on physician’s determination (mild, moderate, severe, most severe), Sartorius score, Hurley staging
- Treatment → antibiotics, surgical resection, immunosuppressants, anti-TNF-a agents- Prognosis → efficacy of treatment, presence of cancer” |
| Research item |
Sex, Date of birth, Family history, Past medical history, Complication, History of present illness, History of treatment, Degree of severity, Prognosis
|
| Contact |
Koremasa Hayama / Tadashi Terui |
| E-mail address |
hayama-nhn●umin.ac.jp/ terui.tadashi●nihon-u.ac.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
