| Item | Content |
|---|
| Research project name |
Research Project on the Rare / Intractable Disease |
| Study title |
Intractable Liver and Biliary Diseases Study Group of Japan |
| Name of principal investigator |
Hajime Takikawa |
| Name of institution of the principal investigator |
Teikyo University School of Medicine |
| Target disease |
Autoimmune hepatitis, primary biliary cholangitis, primary sclerosing cholangitis |
| Registry name |
AIH, PBC, PSC National Survey Registry |
| Purpose of registry |
Survey of natural history, Investigation into the number or the distribution of patients, Patient recruitment for clinical trials or other interventional studies
|
| Overview of registry |
This registry is the collection of the results of the national surveys on the diseases for the institution of this study group and other institutions approximately every three years.
|
| Research item |
Sex, Date of birth, Information about the current medical institutions of patients, Family history, Complication, History of treatment, Laboratory data, Degree of severity, Clinical course, Prognosis, Cause of death
|
| Contact |
Atsushi Tanaka (Department of Internal Medicine, Teikyo University Hospital) |
| E-mail address |
a-tanaka●med.teikyo-u.ac.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
